Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts
Friday, June 22, 2018
Thursday, September 22, 2016
Saturday, July 23, 2016
It was a toy truck.
"The cop was actually trying to shoot the Autistic man, but he missed."
July 21st, 2016:
I wanted to put my fist through a wall that day.
This is not the first time an Autistic has been shot at or shot by police simply cuz Autistic.
If you think it won't happen again you're an idiot.
Tuesday, July 19, 2016
I've had a broken heart for about two months.
This is why.
The one other non verbal Autistic that I had been following on Youtube died. He was 18. He suffered from a very rare life threatening disease, and while I will never go through what Kreed's mother went through, I can't shake this. Every time I think about Kreed's family my body goes cold.
The only thing I can think of that I would want others to take from this is to visit Kreed's facebook page: https://www.facebook.com/kreedsworld and watch his Youtube videos.
The only thing that helped Kreed's pain was medicinal cannabis. His mother is a big advocate of legalizing medical cannabis and so am I. You can just watch the videos of what Kreed was like before and after his doses.
Anyway.
This is the first time I've mentioned this online to anyone.
I just wanted to show how much more there is to Youtube then just revenue, trolling, drama, entertainment, and play button plaques.
There are microcosms woven into it. Lives beginning and lives ending.
Those microcosms are what made Youtube what it is today.
The one other non verbal Autistic that I had been following on Youtube died. He was 18. He suffered from a very rare life threatening disease, and while I will never go through what Kreed's mother went through, I can't shake this. Every time I think about Kreed's family my body goes cold.
The only thing I can think of that I would want others to take from this is to visit Kreed's facebook page: https://www.facebook.com/kreedsworld and watch his Youtube videos.
The only thing that helped Kreed's pain was medicinal cannabis. His mother is a big advocate of legalizing medical cannabis and so am I. You can just watch the videos of what Kreed was like before and after his doses.
Anyway.
This is the first time I've mentioned this online to anyone.
I just wanted to show how much more there is to Youtube then just revenue, trolling, drama, entertainment, and play button plaques.
There are microcosms woven into it. Lives beginning and lives ending.
Those microcosms are what made Youtube what it is today.
Wednesday, March 9, 2016
Thursday, January 28, 2016
Monday, December 7, 2015
Wednesday, September 17, 2014
What's in a name?
I understand why one would cry over it, but honestly, from where I'm sitting it's hard to get that upset by how cruel people can be to special needs kids because my daughter and I have been raised in an environment that just doesn't tolerate that kind of behavior.
 |
| Lexi with her pet dogs Kermit and Marbles |
People can talk all the shit they want about New Jersey, but it takes a village to raise a child, and my non-verbal Autistic daughter Alexis is one of the sweetest, kindest, most well-behaved kids I have ever known in my life. She is growing up in a very Stars Hollow "If we burn, you burn with us" type of town, so on second thought, I can only speak for myself when it comes to the tolerance of a small town in NJ.
Why are we so tolerant of Autism here? Because of the Jersey Shore, of course:
Autistics LOVE water!
Anyway.
My kid's looks obviously don't hurt but they have nothing to do with how amazing she is. And she's amazing not just because I happen to be awesome at being a single mother even though I'm the baby (aka spoiled brat due to my one and only sibling being 8 years older and a second Mom to me) of my family, but because of the school she goes to and the treatment that has been available to her. It is also because of the treatment given to myself, her father, my parents, my family, friends, and acquaintances by people who are good at their job and make sure they do their job at no expense to us.
No expense to us because they would rather pay out of pocket and help the cause than choose to follow the money like Toucan Sam and join the 1%. The NJ PASC campus that my daughter goes to always needs donations, and I do my best with what I can work with. Charity begins in the home.
The best way to keep the power of tolerance going is to understand that nothing and no one will just hand it over to you: you have to take it, and if you can't take it outright, you fight for it.
Maybe it's the US army vet relatives in my blood, both alive and dead that's also talking right now, but hope is the only thing that is ever worth fighting for, because despite our differences as human beings, there is always one universal truth that can change enemies into allies: if there is hope, there is no room for fear.
Wednesday, September 10, 2014
Saturday, February 23, 2013
She Plays For Keeps
Lexi didn't make it to school yesterday. My dad had the day off so he tried to help me out. She was walking around just fine outside for a bit, but as soon as she saw the school bus, she tensed up and went dead weight. My dad tried carrying her but she was punching, kicking, clawing and yelling. We managed to get her on the steps of the bus but she wouldn't budge.
Monday morning her teacher and a lady from special services are going to come a few minutes before the bus comes and seeing if Lexi has her teacher with her maybe she'll get on the bus. Here's hoping.
She went through this phase when she was little. Except back then, of course, she weighed less and we could get her into the car seat. Once my parents were trying to get her into the car to go see my sister and she fought so hard that my dad had to bring her back into the house with me.
I can't wait for this to pass.
Monday morning her teacher and a lady from special services are going to come a few minutes before the bus comes and seeing if Lexi has her teacher with her maybe she'll get on the bus. Here's hoping.
She went through this phase when she was little. Except back then, of course, she weighed less and we could get her into the car seat. Once my parents were trying to get her into the car to go see my sister and she fought so hard that my dad had to bring her back into the house with me.
I can't wait for this to pass.
Tuesday, January 29, 2013
The Autism Spectrum 10 Commandments
TEN COMMANDMENTS FOR INTERACTING WITH KIDS ON THE AUTISM SPECTRUM...
by Mari Nosal
http://www.linkedin.com/pub/mari-nosal-m-ed-cece/15/b06/95b
https://twitter.com/marimouth
1. Thou shall not yell when speaking to me.
My disability does not impair my hearing and I am extremely bright. Perhaps even brighter than you are.
2. Thou shall not ignore me, talk negatively about me, speak unnaturally slow, or ask questions to others in the room that pertain to me. I can comprehend what you are saying just fine.
3. Thou shall believe in me and help me believe in my skills and self worth. Note the good in me and do not merely point out my negative behaviors. Believe in me and I will believe in myself.
4. Thou shall not perceive me as dumb.
I am extremely intelligent. I do not learn in the same way as you, and maybe not as quickly as you expect me to. Have patience with me. Once I recall information, I never forget.
5. Thou shall not judge my behavior.
I can get overstimulated in certain environments. I may be hypersensitive to sound and loud noises may hurt my ears. Fluorescent lights are distracting for me. They have a humming noise, and can pulsate. All the noises in a room can blur together. Please make accommodations to help me.
6. Thou shall not be so quick to scold me.
Do not tell me that “I know what I did”. I do not. Tell me what my infraction was in a simple, concise manner. I want to please you, but I have difficulties inferring meaning within a vague statement. For instance, do not say please clean up your bedroom. Tell me exactly what you want, such as ‘Please make your bed and pick up your toys”.
7. Thou shall not compare me to others.
Please remind me, and note the talents that I possess. This increases my confidence and positive self worth. Learning disabled or not, we ALL have talents to contribute within society. I need you to help me realize what mine is. Believe in me and I will believe in myself.
8. Thou shall not exclude me from activities.
Please do not mimic me, ignore me, or bully me. Please invite me to play with you. It hurts my feelings when I am excluded. I like to run and jump in the playground, and be invited to birthday parties too. Grownups can help me make friends by encouraging other children to play with me. I can be a loyal friend if you get to
know me.
9. Thou shall give me choices.
I do not like being ordered about any more than the other children. Give me choices so I know you value my capabilities and opinions. Make them simple and concise. Present two options or so. I get confused when too many questions or directions are given at one time due to my processing speed. For instance, ask me if I would like to wear my blue sweater or green one, rather than asking which sweater I would like to wear.
10. Thou shall not judge me by my diagnosis, but by my character.
I am an individual, just like other children. As my son used to say, “Mom my name is John (name changed for his anonymity) not Asperger’s”. A profound statement I would say. :-0)
by Mari Nosal
http://www.linkedin.com/pub/mari-nosal-m-ed-cece/15/b06/95b
https://twitter.com/marimouth
1. Thou shall not yell when speaking to me.
My disability does not impair my hearing and I am extremely bright. Perhaps even brighter than you are.
2. Thou shall not ignore me, talk negatively about me, speak unnaturally slow, or ask questions to others in the room that pertain to me. I can comprehend what you are saying just fine.
3. Thou shall believe in me and help me believe in my skills and self worth. Note the good in me and do not merely point out my negative behaviors. Believe in me and I will believe in myself.
4. Thou shall not perceive me as dumb.
I am extremely intelligent. I do not learn in the same way as you, and maybe not as quickly as you expect me to. Have patience with me. Once I recall information, I never forget.
5. Thou shall not judge my behavior.
I can get overstimulated in certain environments. I may be hypersensitive to sound and loud noises may hurt my ears. Fluorescent lights are distracting for me. They have a humming noise, and can pulsate. All the noises in a room can blur together. Please make accommodations to help me.
6. Thou shall not be so quick to scold me.
Do not tell me that “I know what I did”. I do not. Tell me what my infraction was in a simple, concise manner. I want to please you, but I have difficulties inferring meaning within a vague statement. For instance, do not say please clean up your bedroom. Tell me exactly what you want, such as ‘Please make your bed and pick up your toys”.
7. Thou shall not compare me to others.
Please remind me, and note the talents that I possess. This increases my confidence and positive self worth. Learning disabled or not, we ALL have talents to contribute within society. I need you to help me realize what mine is. Believe in me and I will believe in myself.
8. Thou shall not exclude me from activities.
Please do not mimic me, ignore me, or bully me. Please invite me to play with you. It hurts my feelings when I am excluded. I like to run and jump in the playground, and be invited to birthday parties too. Grownups can help me make friends by encouraging other children to play with me. I can be a loyal friend if you get to
know me.
9. Thou shall give me choices.
I do not like being ordered about any more than the other children. Give me choices so I know you value my capabilities and opinions. Make them simple and concise. Present two options or so. I get confused when too many questions or directions are given at one time due to my processing speed. For instance, ask me if I would like to wear my blue sweater or green one, rather than asking which sweater I would like to wear.
10. Thou shall not judge me by my diagnosis, but by my character.
I am an individual, just like other children. As my son used to say, “Mom my name is John (name changed for his anonymity) not Asperger’s”. A profound statement I would say. :-0)
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